Apr 03 , 2014
Over approximately the past 2 decades, with the rise in the prevalence of autism, an entire industry has grown up around treating and teaching children and adults with autism, as well as easing the challenges and improving the quality of day-to-day life for individuals on the autism spectrum. Within this growing market, the past 10 to 15 years has seen the adaptation of many new technologies to the particular needs of individuals with Autism.
The purpose of this article is to examine emerging technologies that teach, support and enhance the lives of children and adults with Autism and their families. In furtherance of this investigation I conducted searches of academic publications as well as popular media, and I conducted an interview with a current doctoral student at MIT who is studying autism and technology. My initial expectations were to find a sampling of apps and software that addressed various symptoms of autism. I quickly discovered that the range and depth of innovative technology solutions goes beyond the basic educational issues, and addresses solutions to problems I hadn't even considered, particularly in the areas of interaction, social skills, and the teaching and processing of emotions.
Overview of Autism and Technology
Recently, the use of Ipad apps to bridge the communication deficit associated with autism has received significant media attention. Six months ago a simple iTunes store search for “autism apps” turned up 243 results. That same search this morning rendered 1054 apps. Apps, however, are just one isolated example of the range of technological advances that are being applied to autism.
A survey of the scientific literature revealed emerging technologies that are being applied to extremely broad areas of autism education, including: diagnosis and assessment (Xu, 2009), communication skills (Bereznak, 2012), Affect and Emotion (Picard, 2009), Social Skills (Robins, 2006; Billard (2007), Visual Attention and Perception (Klin, 2002; Boraston, 2007; Sasson, 2008), and basic Academic Skills (Moore, 2000; Passerino, 2008; Pinnington, 2010). A great deal of the work that has been done in autism education, both technology and non-technology based, has been focused on therapeutic interventions to make children with Autism “normal” or at measures to minimize the disruption created by autistic behaviors that are perceived to be maladaptive. If emerging technologies meet either of these ends, there is certainly a high level of value. However, an intriguing area where emerging technologies may impact the lives of individuals with autism is in capitalizing on the strengths and differences that may be associated with autism spectrum “disorders.” If emerging technologies can help individuals with autism lead more independent and productive lives, and bridge the social and communication gaps that separate them from others, then there is something important to be gained.
For this article, I will focus primarily on emerging technology as it applies to basic therapy; social skills, affect and emotion processing; communication and managing problem behaviors. I will conclude with a discussion of some of the previous limiting factors for technology development in this industry and explain why that tide is turning to open the door for future innovation
Transformative Technology for Autism and Interpersonal Skills
It shocks most people to realize that the Ipad release was just over a few years ago on April 3, 2010. As I mentioned above, there are already well over a thousand apps for the Ipad that are designed or adapted for autism. On the surface, many of these apps are not transformative in nature. Most are simply digital adaptations of existing curriculum or applications adapted from “clunkier” technology. What may be considered transformative, however, is the potential for mobility which is created when you move the therapeutic stimulus materials to a digital format.
Consider, for example, the Applied Behavior Analysis (ABA) style therapy that has been very popular in autism for the past several decades. ABA therapy focuses on the principals of learning via positive reinforcement of correct responses to stimuli (McEachin, Smith & Lovaas, 1993). In the simplest terms, a student is asked a question; they give a response, and receive either positive or negative reinforcement depending on the accuracy of their response. The unique aspect of ABA therapy as applied to children with autism is the intensity. Students generally sit across a small table, one-on-one with a therapist who will drill them on the same question, sometime hundreds of times, to shape the correct response. In this fast-moving, intense environment, therapists need easy access to stimulus materials that they can use conveniently in the small table learning space. Generally the therapists use photographic images. For example, a therapist will lay out 3 pictures of a car, a dog, and a spoon, and then ask the student to “find the spoon.” Until recently, plain printed flashcards served this purpose. Stages Learning Materials publishes the leading set of flashcards designed specifically for this purpose, the Language Builder Picture cards. Now, however, the pictures can be presented electronically via Ipad, iPhone or any tablet style computer. Stages Learning Materials recently released the Language Builder app to present ABA therapy on the ipad.
An ABA therapy app does not on its surface present revolutionary content or pedagogy. It offers the same lessons taught in digital form rather than with paper flash cards. However, the portability of mobile devices significantly expands the scope, pace and environment of the learning opportunities. Therapies previously limited to sitting at a table can now be carried out anywhere. Mobility and a less structured setting have the potential to enhance generalization and facilitate transfer.
As described above, autism is a complex syndrome which presents with a wide range of symptoms. Some individuals that we consider higher functioning, while they may suffer from various social challenges, have normal verbal communication skills. Lower functioning individuals, however, may have limited or no speech capabilities. As such, they are unable to communicate even their most basic needs, to say nothing of their higher level ideas.
Before the proliferation of mobile devices, creative parents and therapist came up with ways to help non-verbal individuals on the autism spectrum to communicate. The most basic tool was a collection of important pictures (food, bathroom, emergency, etc.) placed on a ring that the individual could carry around with them or even attach to a belt loop. Communication was accomplished by selecting a representative picture from the ring and showing it to someone who could help get their needs met.
In the early 1990’s a few companies actually created very rudimentary digital devices that had buttons with pictures on them (DynaVox Mayer-Johnson, 2012). An individual could push a button and the device would say the corresponding word… in effect speaking for the non-verbal person. But, these communication devices were static and not adaptable. They were limited by the number of buttons you could put on it, while keeping it small enough to carry around (Gea-Megias, 2004).
One of the more valuable current uses for mobile devices with individuals with autism is as an assistive communication device. With iPhones, Ipads and tablet computers, you are not limited by the number of words you can include. The device can store an entire language, and can be customized to meet the needs of, and to grow with, the individual using it. In the speech-language field these devices are referred to as AAC, or Augmentative and Alternative Communication Systems.
Critics of AAC worry that by giving non-verbal individuals an electronic device for communication; we will demotivate them to actually learn to speak. However, research has shown that for some individuals, use of an AAC actually helps to enhance their verbal learning (Schlosser, 2007; Kagohara, 2012).
Affect, Emotion & Social Skills
Individuals with autism experience challenges with affect and emotion primarily in two ways: 1) Not being able to correctly discern and draw meaning from the emotional state of the people with whom they interact, and 2) not being able to communicate or react appropriately to their own emotional states. These deficits are major obstacles in both education and social development. Any technology that could help individuals with autism processes their own emotions or the emotions of others would increase their opportunities for education, occupation, relationships, and quality of life. I will describe 3 technologies, the Self-Cam, social signal processing, and glasses that provide digital feedback to the wearer. Then I will summarize how these 3 technologies, taken together, could offer a transformative technology to individuals with autism by assisting their interpretation of social interactions.
A pilot study of the first prototype is currently underway at the Groden Center in Providence, RI to investigate how the wearable system compares to other types of autism intervention (Goodwin, 2012). Ten young adults with Autism or Asperger Syndrome will wear the Self-Cam three times a week for 10 weeks. They will then use a computerized system that analyzes the facial expressions of the people with whom they interacted. The results will be compared to a matched group who will use a currently available DVD program that teaches emotions. The goal is to discern weather access to a “replay” of the day’s interaction will give individuals with autism or Asperger Syndrome a chance to study and better understand interpersonal interactions in a safe, non-real-time setting.
When wearable cameras were first conceived they were bulky and unsightly, however now, with cameras getting much smaller, the devices can be put into jewelry or sewn into clothing (El Kaliouby, 2006). In this way, the technology is less of a distraction, and can be integrated into the wearer’s everyday life.
MindReader API builds on a program that Rana el Kaliouby (2005) worked on as part of her doctoral dissertation. El Kaliouby developed a digital model for “mind-reading.” The goal was to create a system that could interpret more complex mental states than just simple emotions, such as “agreeing,” “concentrating,” “disagreeing,” “interested,” “unsure,” “or “thinking.” To break down the complexity of facial expression into manageable information that the computer could interpret, the design focuses on 24 “landmarks” on the face, then examines how each of those parts change shape when we display a particular emotion. The computational model was able to read these mental states with an average of 77.4% accuracy, and a top accuracy of 88.9%. Integrated with video monitoring systems, this type of software could provide valuable real-time feedback to individuals with autism or Asperger Syndrome to help them manage their day to day personal interactions.
Managing Problem Behaviors
Among the most difficult challenges faced by individuals with autism and their families is the propensity for seemingly unprovoked tantrums of either aggression or of self-injury. Families and caregivers often report that the individual with autism showed no outward signs of growing discomfort, and that the outburst seemed to come out of nowhere. Researchers have found, however, that even in the absence of visible signs of distress, the individual may have an unusually high heart rate or show other non-visible signs of sympathetic arousal (Goodwin et al., 2006). The stress that has been building on the inside may eventually culminate in an outburst that, while seemingly without precipitation, has been building up for some time.
Rosalind Picard, MIT Media Lab researcher, faculty member, and founder and director of the Affective Computing Research Group, has pioneered a device that can be inconspicuously worn on the wrist and measures changes in skin conductivity which often corresponds with emotional arousal (Picard, 2006). Ideally, such a device could monitor physiological changes in an individual with autism and alert parents and caregivers to potential behavioral problems so they could change the individual’s environment or otherwise intervene.
During an interview with Micah Eckhardt, a PhD candidate at MIT I learned that while a wearable “mood sensor” for autism would be significant benefit to the quality of life of the individual and their families, this device as it stands right now is not quite sufficient (Eckhardt, Micah, personal communication, October 2, 2012). The measurements of skin conductivity related to a particular emotion have not proven consistent from one individual to the next; and, they have even varied significantly with the same individual from one day to the next. Further, the data does not provide information on the quality of the emotion being experienced. It is impossible to tell whether the wearer is happy, sad, or just stepped into a warmer room. Picard (2006) suggests that with more data we may be able to tease out finer distinctions. I believe that a better route would be to investigate ways to incorporate additional sensors into the device that may be able test pH levels, heart rate, blood pressure or other biological measures, which when interpreted together would offer more reliable or predictive information. Clearly this will take significantly more interdisciplinary research.
My personal experience with this industry includes 15 years of running an educational publishing company, Stages Learning Materials, focusing primarily on supplemental school supplies and therapy products for autism education. Last year I added a software program to my product offering. The program takes images from one of my most popular products and digitalized them for the PC and Mac platform. And, as I described above, I am currently in production on an app that will take the same basic design which teaches basic vocabulary and categorization skills and adapt it to the Ipad and Android tablet devices.
I have been attending conferences in the autism industry for two decades. During that time I have seen an amazing growth of the variety and quality of tools available for individuals with autism and their families. However, over the past 5 years the number and variety of technology companies that are entering the market has skyrocketed.
In previous years, I would say that the barriers to innovation in the industry were the lack of information and understanding surrounding autism and Asperger Syndrome, and the perception of a small market size. At this point, neither of those barriers still exists. Psychology, psychiatry, neurology, and general medicine are dedicating significant time and money to autism research, and more and more is understood every day. And, as mentioned at the outset of this paper, the number of individuals with a diagnosis on the autism spectrum is now extremely high. Further, a cascade of state governments has enacted insurance laws to mandate coverage for autism treatment and education. As things stand now, autism is a huge market with substantial funding. Research, innovation and products will follow.
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